Showing posts with label Spina Bifida. Show all posts
Showing posts with label Spina Bifida. Show all posts

Wednesday, January 4, 2017

What God has Taught Me in 2016

With the official end of 2016, I can hear the lyrics to one of my favorite songs ringing through the air:

"Five hundred twenty-five thousand Six hundred minutes; Five hundred twenty-five thousand Moments so dear. Five hundred twenty-five thousand Six hundred minutes. How do you measure - measure a year? In daylights - in sunsets. In midnights - in cups of coffee. In inches - in miles. In laughter - in strife. In - five hundred twenty-five thousand Six hundred minutes...How do you measure A year in the life. How about love?"

As the first week of January 2017 comes to a close, I have been contemplating about the lessons that I have learned throughout 2016 during my last five hundred twenty-five thousand six hundred minutes on Earth.

{ONE}
There is a Beauty in Suffering

Suffering is something that scares me. Hurting mentally, physically or emotionally is something that I try to avoid at all costs. However, over the past year, I have struggled physically with my Spina Bifida and mentally and emotionally with my depression and anxiety. 

Spina Bifida is the most common permanently disabling birth defect in the United States. Spina Bifida literally means “split spine.” Spina Bifida occurs when a baby is in the womb and the spinal column does not close all of the way. I was born essentially with a hole in my back and spine and it is extremely painful. Lately my condition has caused muscle spasms up and down my legs and back and I receive shooting pains when I walk, sit or stand. Sometimes it feels like there is no relief. My amazing husband rubs Biofreeze and massages my spasming muscles everyday for me. I am so blessed to have him. 

Depression and Anxiety are two more enemies that I face everyday. I have my good days and bad days just like everyone else but sometimes it is an all out battle just to complete every day activities. I just want to sit in bed and cry or I over think a situation to a point where I no longer have the motivation to try anything new.

It is through this physical, emotional and mental suffering that I have found a closeness to God that I have never known. I honestly use to pity myself and just felt that I deserved to feel this pain because it was a punishment of some sort. I know now that is not the case. I feel God comfort me when I cry out asking for pain relief, for him to ease my overactive mind and to calm the sorrows that I feel like are drowning me. I am only 30 years young and I hope to live a long life. I know that my life is a blessing regardless of the pain and that God is besides me, holding me up so that I can make it to the next area he wants me. I am ready and willing to accept this cross. Jesus laid down his life so that I may have one. Who am I to question him? This is who I am. I have also come to accept the beauty in this relationship and cherish the growth in my faith from it. 

{TWO}
The Best Things in Life Aren't Planned


I am a planner. Planning, making lists, organization all make me feel safe and happy. I have come to the realization that life cannot be put together like a puzzle and that the most amazing parts of my life have happened completely differently than I anticipated. The unknown honestly scares me... but I have come to realize that although this is my life, I am not the driver, God is and his plans for me and more wondrous than anything I could dream up myself.This past year has been FULL of surprises and although at times these surprises seemed bad... they were the best things that could have ever happened to me and my family. If someone would have asked me just a few years ago where I would be in my life now? I would have told you a completely different story than what has happened. I am blessed beyond measure

{THREE}
Be More Appreciative

I have an awful habit of not seeing the amazing blessings right in front of my face. I need to learn to be more receptive of these blessings and acknowledge them. My husband would be one of these blessings. He is understanding, loving and thoughtful. I often forget all that he does for me and my family because I focus on the one time he didn't do the laundry, or the time he left dirty clothes on the floor. Why do I focus on such petty everyday activities? I honestly can't tell you why but I know it is not a good thing to do ever!

Our financial status is something else I need to learn to appreciate more. Yes, we owe a lot of money for legal fees and medical care and many other things but we have a nice warm home with an abundance of food and all the necessities we need to survive. We have what we need and that's all that should matter.

My back pain is something else I should appreciate because I only deal with pain when I could be unable to walk or do many other things for myself. Spina Bifida ended the life of my mom's sister before my mom was ever born.... It is a blessing that I am able to get around and I should focus on that more.

{FOUR}
The Journey is just as Important as the Destination


Goalie has been struggling with many different medical diagnoses: ADHD, SPD, Anxiety and he is being tested for Autism. All of these things make school so extremely difficult for him. Although a specific diagnosis would help with his IEP, therapy costs and many other things, it should not change him. My son is amazing. He is the most compassionate human being, he is so loving and has taught me so much about patience, love and courage. We are discovering so much about each other and our relationship as mommy and son through this journey that I don't care if it ever ends. I don't ever want to change him but sometimes I do wish I could change aspects of the world for him. 

{FIVE}
If All Else Fails; Just Love

Several times throughout this year I have been in a situation where I was at a loss for words and action. I just did not know what the right thing to do was for myself or the other people involved. I found that everything always works out when you choose the option that involves Love. Love can be as simple as a hug or listening ear, even if you don't feel like it. Or it can be a grand gesture of volunteering your time, talent or money for something that does not affect you. It also mean offering forgiveness or something else as difficult. Release yourself from the chains that hate breeds and allow healing and love to enter your soul. This is a lesson that I have had a hard time swallowing over the past few years. I have shared my story several times and although it's not pretty, it has led me to this moment here with my family and I wouldn't change a thing. Love can transform this world if we let it. This is the greatest thing that I have learned this year. 

I have shared these thoughts not for any other reason than to share my wisdom gained. Although these lessons may have been officially "learned" over the course of the past year, I can guarantee you that the Lord has been working on me for quite a longer time than just a year. So please, keep your heart and soul open to hear the advice that he is attempting to teach you and let's make 2017 the best possible year for ourselves and all those that we meet along the way. I am sharing this with Revolution of Love. 

God Bless!

Saturday, October 8, 2016

{SQT}: Hello October

This is the first week of October and man it has been an immeasurable amount of amazing and that's why I am a day late sharing. Here are my Seven Quick Takes of the Week! 

{ONE}


Goalie was Superhero of the Week at school! I am so beyond proud. Goalie really struggles with his ability to stay focused and sit still during class. We even had to add some behavioral goals to his IEP to help him work on these areas so him receiving something like this made me cry happy tears! The principal hand picks the students based on their effort and willingness to do what's right. Goalie had such an amazing week being line leader, getting to share special things about himself to his class and having an extra special treat with his principal. 

{TWO}


Soccer season has finally ended! Monday was our last game. Goalie was really sad because he loves having a team and getting to run, run, and run some more. Cupcakes always make things better and as you can see by the huge smile on his face, the cupcake certainly cut the sting of sadness away. He is also excited that he is almost old enough to start Football though so we will see how things go there. 

{THREE}



October 4th was the Feast of Saint Francis and we did a Blessing of the Animals together. We have three cats and let me tell you: Holy water, kids and cats do not mix! The kids were so excited to "bless" the animals because they knew cats don't like water. Granted my husband only sprinkled the holy water but all three cats flew out of their spots into different rooms. I almost felt bad allowing the blessing to happen but the kitties also received a brand new scratching post, catnip and soft food for dinner. They will forgive us one day... hopefully. 

{FOUR}


October has officially begun and it is a month full of meaning. October is dedicated to the Holy Rosary, Respecting Life, Breast Cancer Awareness, ADHD Awareness, Spina Bifida Awareness and many other things. All of these causes have an impact on me and my life and we are attempting to find ways to acknowledge all this in our family. What do you celebrate this month? Anything that has a special place in your heart? How do you make it special to your family?

{FIVE}


I received my first Little Catholic Box this month!!! I am in love! My dad purchased the subscription for me as a gift and I was blown away by the awesomeness that was packed into this box! I am so excited to see what is to come and to share all the goodies with my family. How many of you have this great subscription? It is definitely worth giving a try!

{SIX}


We are really getting into the Autumn Spirit! To start things off we attended the Apple Day hosted in Penrose, Colorado. It was a great experience! We have two fall festivals this weekend and we have so much more planned before the end of this season. 

{SEVEN}


This is our family's first year joining the Boy Scouts of America and becoming a scouting family. Little Man and Goalie have both earned their first badge! The Bobcat Badge. I am in pursuit of some Scouting uniforms and in the process of creating a binder for the boys to keep their badges together so they have something to look back on if they decide to stick with the Boy Scouts. We just signed up for our first outdoor event for next weekend too! This October and Autumn season is turning out to be a very memorable one!

God Bless!

Wednesday, October 5, 2016

{JEI}: Respect Life Month

Welcome to my favorite linkup of the week called Just Enough Info with The Zelie Group. This week we are discussing the theme of October, which is Respect Life Month. In addition to this link up I would suggest you take a look at Instagram and follow the #Rosaryathon. I have so enjoyed participating in the Rosayathon this far and hope to see you join in the fun!



Time to get back to the JEI Linkup and I'd love to introduce you to the other hosts of the Just Enough Info Linkup:


Jessica (myself) – Pinot Noir and Prayers | Instagram | Facebook
Alicia – Sweeping Up Joy | Pinterest | Facebook
Kirby – Under Thy Roof | Instagram | Facebook

1. Does your family or parish mark the month in a special way?


October is Respect Life Month but it is also Breast Cancer Awareness Month, ADHD Awareness Month and Spina Bifida Awareness Month which are all important issues in our family. Cancer has taken the lives of several of my close relatives over the years and we have had some Breast Cancer scares. My youngest son is ADHD and I continue to fight for him to get the assistance he needs to cope with his overactive mind and body. I have Spina Bifida. Spina Bifida is a birth defect and cannot be "cured". I had surgery as a child to close the opening in my spine and I have been lucky to not have any complications until now. I think I will save my story dealing with this disability for another time though. 

Back to the question: We do incorporate intentions for the unborn into our family rosary but that is really the extent of anything we have done in the past. This year I plan on doing a Spiritual Adoption because I am on a new fertility journey that I hope leads us to adding a child (and more) into our family. 


As for my parish, I'm not sure yet. We haven't been registered with our parish for even a year yet so we are still learning about all the amazing things they have to offer to us and the community. We were given signs to display in our yards in protest of proposition 106. It would allow physician suicide assistance for the elderly, people with terminal illness and others who are not strong enough to fight for themselves. We should respect all life. God does not make mistakes and although our lives may require suffering, it is ours to endure and part of our story. 


2. Do you have any books or resources to recommend on the Respect Life theme?

I am sad to say that I don't have any books or resources that i could recommend. I am in the process of doing some research for another project that will hopefully help me come across some suggestions if I get asked in the future. I would also love to hear about your suggestions if you have any!


3. What do you wish others understood about the Respect Life message?


I wish that everyone understood that life is a gift. It is not meant to be bad or carry a negative connotation. Unplanned pregnancies, terminal illnesses and so many other unforeseen events that can occur in anyone's life are milestones and crossroads in your life. You can either embrace the things that scare you and face them head on or fight against God's plan for you. As Christians we are asked to embrace the uncertainty knowing that God knows what he is doing. It is when we decide to fight against his plan that things can get messy. I pray that we are all strong enough to put our faith in God and know that his plan is perfect for us and the whole world. Let his will be done.

Well that is my take on Just Enough Info this week. I would love to hear your thoughts! Feel free to use the beautiful picture below in your linkup post if you so desire!


Please Join us and Link Up with your answers to this week's questions about Respecting Life Month (October). Here are the questions:

1. Does your family or parish mark the month in a special way?
2. Do you have any books or resources to recommend on the Respect Life theme?
3. What do you wish others understood about the Respect Life message?

Next week we will be discussing Autumn/Fall Family Fun:

1. Best fall flavor: apple or pumpkin?
2. The leaves are changing colors, and the air is crisp. What are you looking forward to about fall?
3. Do you decorate for the season (and which is it: fall or autumn?)

Feel free to check out the last few weeks of JEI to learn about the link up rules and other fun topics we have already discussed:


The Zelie Group has some fun questions coming up in the next few weeks so make sure to follow us on Facebook and we would love to hear what you are interested in! What are you looking to learn about? Do you have questions about the Faith? Questions about the Liturgical Year? We want to help and learn and grow with you and your families!
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